This section outlines the benefits of becoming a member of mydyspepsia.com and participating in the site.

Overview

Membership benefits

Privacy policy

Participation

   
 
 
 
 
     
     
       
     
         
           
Overview

The website, mydyspepsia.com has been designed to be a resource for information and support for those with dyspepsia, GERD and related disorders (e.g. ulcers, gallstones, H. pylori infection, hiatal hernia, Barrett's esophagus), and is part of a research project aimed at assessing the information needs and well-being of those with these disorders.

The resource component of this site has been designed to provide those with symptoms of dyspepsia and GERD with information regarding their symptoms, risk factors and possible treatment options, as well as news relevant to dyspepsia, GERD and related conditions. The discussion section is designed to provide a forum for support and an opportunity to discuss issues important to those who use the site.

The research component has two aims: (1) a quantitative assessment of patients' well-being and disease knowledge through the use of surveys, and (2) a qualitative assessment of the relationship between disease knowledge, patient concerns and health care choices, to be accomplished through "real-time" on-line interviews and a review of message board postings. The responses from you, the on-line participant, will be compared to those from patients seeing a specialist for their condition.

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Membership benefits

When you register with mydyspepsia.com, you will be able to take advantage of our membership benefits. These include;

1) Being able to take part in our surveys and getting personalized interpretation of your responses by e-mail.

2) Being able to take part in our discussion panel/ message board.

3) Being able to submit your questions to our Gastroenterologist, - one question each month will be selected from all the submissions and a detailed response will be posted on our site.

4) Being updated when new clinical trials begin at McMaster's division of gastroenterology (if you are in the Hamilton catchment area.).

If you prefer not to receive the results of your survey submissions or with research updates, you may indicate that you do not want to be contacted.

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Privacy Policy

If you choose to become a member and participate in the research component of the site, it is important that you know that only the site adjudicator and the principle investigator will have access to the information you submit. No sponsors or other agencies will ever have access to your personal information and you will not be identifiable in any published reports.

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Participation

Note that you do not have to become a member of mydyspepsia.com in order to access the posted messages and the information available in this site. You may use this site as an information resource without registering, but if you want to participate by posting messages or completing a survey, you will be asked to become a member and register. If you register, you will be asked to provide some basic demographic information about yourself (e.g. age, gender), and to provide an e-mail address. You will not be contacted unless you indicate that you would like to be contacted (e.g you would like a personalized interpretation of your survey responses).

If you choose to participate, but then decide to withdraw at any time, for any reason, or if you have any questions regarding mydyspepsia.com membership, please e-mail the site adjudicator:


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